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    A FREE RESOURCE for People with MS by People with MS. ==================================
    Italian group offers $4.5M to fund new MS research on CCSVI ("Chronic cerebro-spinal venous insufficiency") PDF Print E-mail
    Written by Stuart Schlossman   
    Thursday, 28 January 2010 18:03

    Avis Favaro, CTV Medical Specialist

    Date: Wednesday Jan. 27, 2010 5:53 PM ET

    The Italian Multiple Sclerosis Foundation today announced it will allocate up to $4.5 million to fund ongoing research into CCSVI, a condition linked to Multiple Sclerosis.


    The foundation says it is accepting research proposals until March 8 from scientists interested in studying "chronic cerebro-spinal venous insufficiency," a newly-discovered condition uncovered by a team at the University of Ferrara in Italy and lead scientist Dr. Paolo Zamboni.


    “We await proposals from groups of Italian researchers, in particular by the research groups that are already active with Prof. Zamboni,” the foundation said in an Italian news release.


    Zamboni's team believes that CCSVI causes veins in the neck and upper chest to twist, narrow or become blocked; in some cases, these veins never form at all. The result is poor blood drainage from the brain. Zamboni has found that more than 90 per cent of patients with MS have these malformed veins, and improper blood flow from the brain.


    Roberta Amaedo, president of the Italian Association for Multiple Sclerosis, said in the release: "We need certainty about the relationship between MS and CCSVI and on the clinical course that this can cause, and on that, clinical trials will make an important contribution.”

    The association also cautioned patients against seeking endovascular or surgical procedures to open these blocked veins outside of controlled research studies.


    Continue reading and watch a video by clicking here

     



     
    MS Views and News - FIRST MS Education Program, taking place on February 6, 2010 PDF Print E-mail
    Written by Stuart Schlossman   
    Monday, 04 January 2010 10:42

    "MS Views and News" (MSV&N) will host it's first MS education program on February 6, 2010 in Miami.

    .

    Our First education Program is designed for the Spanish speaking MS community.

    Please click this link, to learn more of this program.

    .

    Raffles Prizes (for Chili's and other things) will be given away at the end of the program at No Cost to you.
    .
    This program is not just for the MS patient.
    It is also for the Family Member or Friend who wants to learn more of Multiple Sclerosis.
    .

    Dr. Angel Chinea, Director of the MS Center in Puerto Rico, will be the Speaker of this Spanish Language program, taking place on February 6, 2010.

    .

    An RSVP is required. Click the above link for more information.

    Please RSVP (via email or phone) for this luncheon program

    .

    RSVP soon as space is limited

     

    "Su Vida Con Esclerosis Múltiple" es para pacientes de EM y sus familiares.

    Reserve sus espacios. Responda por email a: This e-mail address is being protected from spambots. You need JavaScript enabled to view it


     


     

     



    Last Updated on Wednesday, 27 January 2010 12:05
     
    FDA Approves Fampridine SR, Now Called Ampyra,™ to Improve Walking for People with All Types of MS PDF Print E-mail
    Written by Stuart Schlossman   
    Friday, 22 January 2010 22:08

    National MS Society Press Release - January 22, 2010

    Contact Arney Rosenblat - This e-mail address is being protected from spambots. You need JavaScript enabled to view it

     

    AMPYRA (Fampridine SR) IS FIRST SYMPTOM MANAGEMENT DRUG DEVELOPED SPECIFICALLY TO TREAT MS, THE FIRST ORAL MS THERAPY APPROVED FOR MS, AND THE FIRST NEW FDA APPROVED THERAPY TO COME THROUGH THE MS PIPELINE SINCE 2004

     


    New York, NY…..The U.S. Food and Drug Administration has approved the marketing of Ampyra™ (dalfampridine, formerly known as fampridine SR, from Acorda Therapeutics) for its ability to improve walking speed in people with any type of multiple sclerosis.


    Ampyra is the first therapy specifically approved to treat a symptom of MS, and as an oral drug it represents a big step forward for many people who may benefit from its use.  Ampyra is also the first new FDA approved therapy for MS since 2004. http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=2586


    “The FDA’s approval of Ampyra is wonderful news for many people with MS who experience problems with walking,” said John R. Richert, MD, Executive Vice President for Research & Clinical Programs at the National MS Society. “This brings a welcome symptomatic therapy that may restore some function and make a real difference in quality of life for a large number of people with different types of MS.”

    Further study and clinical practice may help determine the extent to which the drug may impact other functions not measured in the clinical trials, and provide hints as to which individuals are most likely to respond.


    Ampyra, formerly known as fampridine SR, is a tablet containing a sustained-release formula of 4-aminopyridine, which blocks tiny pores, or potassium channels, on the surface of nerve fibers. This blocking ability may improve the conduction of nerve signals in nerve fibers whose insulating myelin coating has been damaged by MS. The first studies of this potassium-blocking approach in people with MS were supported by the National MS Society.


    A recent survey among more than 1,000 individuals with MS and many of their family members examined the impact of difficulty walking on quality of life among patients with MS and their families. Some two-thirds of patients reported difficulty walking and of these, 70% reported that such difficulty was the most challenging part of their MS, and most reported that difficulty walking restricts their daily activities significantly, including their ability to travel. (Read more about survey results http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=199)


     

    Most Frequently asked Questions:


    Q. What is Ampyra? (pronounced ahmPEERah)


    A. Ampyra, formerly known as fampridine SR, is a tablet containing a sustained-release formula of 4-aminopyridine, which blocks tiny pores, or potassium channels, on the surface of nerve fibers. This blocking ability may improve the conduction of nerve signals in nerve fibers whose insulating myelin coating has been damaged by MS. The first studies of this potassium-blocking approach in people with MS were supported by the National MS Society


    Read Many other Important Questions, by clicking HERE to be re-directed to the MS Society webpage


    +++++++++++++++++++++++++++++++++


    Remain Up-to-date with MS Views and News, when registered at our website to receive our weekly MS related e-newsletter, following us on facebook and reading our twitter tweets.. Click the registration link found HERE to register. Also, review our blog each day.

    .

     


     

     


     

     

     

    Last Updated on Friday, 22 January 2010 22:50
     
    Having MS information at your fingertips PDF Print E-mail
    Written by Stuart Schlossman   
    Thursday, 21 January 2010 12:19

     

    Important MS Resourcing Links

    .

    Many have asked if they can have access to previous "Stu's Views and MS Related News", e-Newsletters. The answer is quite simple. To access our e-newsletters archives, published since January 1, 2009 click here

    .

    Access hundreds of MS Organizations and MS Bloggers via our MS Blog.

    Familiarize yourself with our MS blog by clicking this link: http://wwwmsviewsandrelatednews.blogspot.com

    Bookmark or save it to your favorites for easier access.

    .

    Here too is easy access to The National MS Society and the MS Foundation

    .

    Use our web resources section on this website or our shared websites and links found on our blog to contact others from around the world.

    .

    .



     

     


    Last Updated on Thursday, 21 January 2010 13:06
     
    About Multiple Sclerosis (MS) PDF Print E-mail
    Written by Stuart Schlossman   
    Saturday, 23 January 2010 10:06

    ''MS Views and News" believes that knowledge is Power, which is why we strive to provide education materials about MS that affect the patient, caregiver and others with interest in MS

    Learning all you can about MS will help you better evaluate your options for managing symptoms, treatments, coordination with your health care team, and living well with your MS.

    In What we know about MS, you can explore:

    What about the MS I live with?

    MS affects each person differently so understanding the basics about MS is just the first step in learning how to live your life well with your MS.

    Whether you have a confirmed diagnosis of MS or are still waiting to find out what your diagnosis might be, you can read about the challenges and opportunities related to each of the different courses and stages of MS:

    Source for the information found here, is the National MS Society

     

     

     


     

     

     

     

    Last Updated on Saturday, 23 January 2010 10:20
     
    Breaking News from the National MS Society how work is proceeding on the pursuit of the CCSVI lead PDF Print E-mail
    Written by Stuart Schlossman   
    Saturday, 09 January 2010 11:12
    UPDATE: Research into Blood Flow in the Brain and Venous Insufficiency, or CCSVI, in MS – Letters of Intent Received from Request for Research Applications Released Worldwide

    Updated January 7, 2010

    Summary: Recent reports are calling attention to the idea that a phenomenon called CCSVI, a reported abnormality in blood drainage from the brain and spinal cord, may contribute to nervous system damage in MS. This hypothesis has been put forth by Dr. Paulo Zamboni from the University of Ferrara in Italy. Based on the results of his initial preliminary findings, Dr. Zamboni states that this pilot study warrants a subsequent larger and better controlled study to definitively evaluate the possible impact of CCSVI on the disease process in MS..

    It has been proposed by Dr. Zamboni, but not yet proven, that CCSVI may be corrected through endovascular surgery, which involves inserting a tiny balloon or stent into blocked veins in order to permit the flow of blood out of the brain and spinal cord, a procedure that has been called “liberation therapy” in some reports..

    UPDATE: The National MS Society is undertaking the funding of new research on CCSVI in MS and has invited investigators worldwide to apply for grants that would explore this lead. In response to a January 6 deadline, the National MS Society and the MS Society of Canada received numerous letters of intent from investigators from seven countries. These letters of intent, which briefly describe the proposed research, will be reviewed and those that meet grant guidelines will be invited to submit full research proposals..

    CCSVI Research Funding Timeline
    January 12, 2010 – Investigators whose letter of intent meet guidelines are invited to submit full research proposals with a deadline of February 9, 2010. 
    May 2010 – International panel of experts conducts an expedited review of all applications received through this special request for applications. 
    June 2010 – Funding decisions announced.
    July 1, 2010 – Anticipated start date for funding of any successful research applications..

    The applications will undergo an accelerated review process by an international panel being convened in cooperation with other MS Societies to ensure an expedited, coordinated response. If this hypothesis is confirmed, it may open up new research avenues into the underlying pathology of MS and new treatment approaches to therapy..

    Continue reading this article and learn more of  the Frequently Asked Questions About CCSVI and MS by clicking here, to be re-directed to the National MS Society website.



     


    Last Updated on Saturday, 09 January 2010 11:23
     
    MS Is More Aggressive in Children but Slower to Cause Disability than in Adults PDF Print E-mail
    Written by Stuart Schlossman   
    Tuesday, 17 November 2009 17:49

    Source: Buffalo Edu News

    Release Date: November 16, 2009

    BUFFALO, N.Y. -- Magnetic resonance images (MRI) of patients diagnosed with multiple sclerosis in childhood show that pediatric onset multiple sclerosis is more aggressive, and causes more brain lesions, than MS diagnosed in adulthood, researchers at the University at Buffalo have reported.

    Interestingly, however, patients with pediatric-onset MS -- which comprise up to 5 percent of total MS cases -- develop disabilities at a slower pace than patients with adult-onset MS, the data showed.

    "Patients with pediatric-onset MS have three times as many relapses annually than patients with adult-onset disease, which suggests there is greater disease activity in this population," said Bianca Weinstock-Guttman, MD, associate professor of neurology in the UB School of Medicine and Biomedical Sciences and corresponding author.



    » Read More

     

     




     

    Last Updated on Tuesday, 17 November 2009 17:55
     
    MS Headlines found at "Stu's Views & M.S. News" PDF Print E-mail
    Written by Stuart Schlossman   
    Thursday, 08 October 2009 17:40
    See the latest MS Headline Postings found at the:
    "Stu's Views & M.S. News", blog
    ..
    Click the web address shown below. Then bookmark and/or save to favorites, for easier access: http://wwwmsviewsandrelatednews.blogspot.com/
    .

    Our e-newsletters will be sent to you from either This e-mail address is being protected from spambots. You need JavaScript enabled to view it "or" This e-mail address is being protected from spambots. You need JavaScript enabled to view it ..

    Please make sure that both email addresses are added to your address book so that our weekly editions do not go to your spam or junk mail folders.

    .

    If you are not yet registered at this website to receive our weekly MS related e-newsletters, then click the link found on the left of this page, to register.
    ...........................................................................................
    Last Updated on Sunday, 25 October 2009 08:26
     
    What if researchers could reboot a misfiring immune system? PDF Print E-mail
    Written by Stuart Schlossman   
    Wednesday, 14 October 2009 11:16

    Body Attacks Self; Body Protects Self

    Source: Discover Magazine - by Eliza Strickland - September 2009 issue

    posted October 14, 2009

    New studies show promise for using a person's own stem cells to protect them from autoimmune disorders like diabetes and multiple sclerosis

    .

    What if researchers could reboot a misfiring immune system? That is the intriguing possibility raised by stem cell transplant specialist Richard Burt. He is pioneering a new treatment for autoimmune disorders, one in which patients’ immune systems are suppressed and then replaced with an infusion of their own immune stem cells, filtered out from their blood. These then grow into all types of blood cells, including the white blood cells of the immune system.

    .

    In autoimmune disorders, the immune system goes haywire and attacks the body’s own tissues. In the case of type 1 diabetes, it destroys the insulin-producing cells in the pancreas, and in multiple sclerosis it strikes the central nervous system.

    .

    Continue to read from  our MS Blog


     




    Last Updated on Tuesday, 17 November 2009 17:59
     
    Web Resources for Individuals with Multiple Sclerosis (MS) PDF Print E-mail
    Written by Stuart Schlossman   
    Wednesday, 11 March 2009 19:58

    The following official websites of various MS organizations provide information, education, and support to individuals with, or affected by Multiple Sclerosis (those affected include the patient, caregiver, family, friends, colleagues, health care providers and other persons with interest). Topics include MS research, disease treatments, symptom management, MS center locations, additional resources, and social/community support.

    .

    Consortium of Multiple Sclerosis Centers (CMSC)
    www.mscare.org or www.narcoms.org

    .


    Multiple Sclerosis Foundation

    http://www.msfocus.org

    .

    National Multiple Sclerosis Society

    http://www.nmss.org

    .

    The Multiple Sclerosis Resource Centre -UK

    .

    Can Do MS

    http://www.candoms.org

    (formerly the Heuga Ctr)

    .

     

    Stuart's Library of MS Archives

    Education Information of Multiple Sclerosis
    .

    Stu's Views and M.S. News - Blog
    .

    The Latin American Association for Multiple Sclerosis
    www.ulasem.org

    .

    Multiple Sclerosis Association of America (MSAA)
    .
    The American Academy of Neurology
    www.aan.com
    .
    International Organization of Multiple Sclerosis Nurses
    www.iomsn.org
    .

    ***************************************************


    Last Updated on Tuesday, 17 November 2009 18:10
     
    MS Drugs in Research PDF Print E-mail
    Written by Stuart Schlossman   
    Monday, 31 August 2009 09:04

    To read about each of the medications shown below, click on each medication separately.

     

     

    Disease Modifying Drugs Ongoing News
    Disease Modifying Drugs Ongoing Research
    Aimspro (Goats Serum)
    ATX-MS-1467
    Azathioprine
    BG-12
    BHT-3009
    Campath
    Cannabis And Cannabinoid Research
    CHR-1103
    Cladribine (Mylinax)
    Cyclophosphamide
    Esperanza Homeopathic NeuroPeptide
    Fampridine-SR
    FTY720 (Fingolimod)
    Further Possible MS Drugs and Treatments
    Genetically Modified Drugs And Components
    Laquinimod
    Low Dose Naltrexone - Latest News
    MBP8298
    Minocycline
    Mitoxantrone and Copaxone Combination Therapy
    MN-166 (Ibudilast)
    Modafinil
    Neur oVax
    Novantrone (Mitoxantrone)
    PEGylated interferon beta-1a
    Possible Drugs For The Treatment Of MS Symptoms
    Prokarin
    Pycnogenol
    Revimmune
    Rituximab (Rituxan)
    RPI-78M
    RTL-1000
    Sativex
    Statins
    Tovaxin
    Trimesta (Oral Estriol)
    Viagra (sildenafil)

    Zenapax (daclizumab)

     



     

     

     

     

     

     

    Last Updated on Saturday, 10 October 2009 22:29
     
    FAQ's about Multiple Sclerosis PDF Print E-mail
    Written by Stuart Schlossman   
    Tuesday, 31 March 2009 14:25

    Source: National MS Society

    Frequently Asked Questions

     

    ----------------------------------------------------------------------------------------------

    Last Updated on Tuesday, 13 October 2009 10:56
     
    MS Views and News Web Resources PDF Print E-mail
    Written by Stuart Schlossman   
    Wednesday, 06 May 2009 10:29

    Using our website's links to useful resources can be found by clicking this link, or by using the link found in our resources section found midway down on the left side of this homepage.

     

     

    Important topics as Alternative therapies can be found. Complimentary alternatives including herbs and vitamins, Yoga, Tai Chi, assistive devices and more can be found when clicking on the Alternatives link.


    Other much needed resource link categories will re-direct you to globally known MS organizations, Pharmaceutical resources, Symptom Management and much more.

    Weekly, this main directory link: "MS Resource Web Links" is updated, in order to continually provide you with information that will help you to better understand and manage Multiple Sclerosis. Additionally, read the articles from our Occupational Therapist and the MS Nurse.

    Inform others who are affected by MS, to let them know what is available to them when using the MS Views and News website.

    If not yet receiving our weekly MS e-newsletter, :"Stu's Views and MS Related News", click the link found to the left, to register.
    .
    MS Views and News can now be found on Facebook: 
    Become A Fan of MS Views and News : http://www.facebook.com/msviewsandnews
    Join us on our MS Views and News Cause page: http://www.causes.com/msviews_andnews 
    .
    .
    .
    Stu's Views & M.S. News Blog now has a syndicated feed (which livejournal bloggers can add to their friend's list and see daily). http://syndicated.livejournal.com/msviews/ - Use this link to receive our daily postings to our MS blog.

     

     



     

    Last Updated on Monday, 31 August 2009 10:25
     
    The Multiple Sclerosis Rollercoaster PDF Print E-mail
    Written by Stuart Schlossman   
    Monday, 22 June 2009 13:29

    Produced by Gavin:  http://www.youtube.com/user/thehappycovv


    You need to a flashplayer enabled browser to view this YouTube video

    Last Updated on Wednesday, 19 August 2009 07:20
     
    What Is Multiple Sclerosis PDF Print E-mail

    CLICK THE "ARROW" TO PLAY. and Learn about Multiple Sclerosis

    ..

    You need to a flashplayer enabled browser to view this YouTube video

    .

    ------------------------------------------------------------------------------

    Click: To View Our Video Library

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    Last Updated on Monday, 15 June 2009 14:13
     
    What it's Like to have Multiple Sclerosis PDF Print E-mail
    Written by Stuart Schlossman   
    Tuesday, 03 March 2009 14:26

    Click the arrow to begin this video

    You need to a flashplayer enabled browser to view this YouTube video

    Last Updated on Monday, 22 June 2009 13:29
     
    International MS Society websites PDF Print E-mail
    Written by Stuart Schlossman   
    Thursday, 24 July 2008 13:18

    UPDATED September 2009

    From the Carnival of Bloggers,


    Last Updated on Saturday, 10 October 2009 07:40
     
    Wheelchair Kamikaze: In Search Of Audrey Hepburn PDF Print E-mail
    Written by Stuart Schlossman   
    Wednesday, 01 July 2009 08:23
    At the request of a friend, The Wheelchair Kamikaze embarks on a quest to find a statue dedicated to Audrey Hepburn, located on the east side of Manhattan. The trip takes us through Central Park an...

    You need to a flashplayer enabled browser to view this YouTube video

    ================================================

    Last Updated on Wednesday, 01 July 2009 08:37
     

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